Sabre Wright had a healthy pregnancy and delivery. But when her and her husband Douglas’ son, Brenton, was 2 months old, Brenton suffered his first seizure. Brenton, now 9 months old, was diagnosed with lissencephaly.
“When he was in utero, his brain didn’t develop the ridges,” Sabre said.
The condition translates to “smooth brain.”
Sabre, Douglas and Brenton are this year’s recipients of the
In its 13th year, the 240-mile ride takes off from Mike Maupin’s house, at 218 N. Sumner Ave. in Wallace at 10 a.m., and registration begins at 9. Poker hands can be purchased for $5 at Maupin’s home, but the ride is a freewill donation, said Maupin, an organizer.
While none of this year’s stops are in the Wright’s home of Imperial, many stops are around there: places such as Trenton, Hayes Center, Venango, Grant, and into Wray and Holyoke, Colorado, Maupin said.
Maupin said he first heard of the Wright family from the woman he is dating, who knows the family.
“I have a warm spot in my heart for little children who have troubles,” he said.
The ride began as a fun day for friends and expanded to the charity it is. It now brings hundreds of bikers and raises thousands of dollars.
“When we leave my place and go down the street, it’s about like a parade,” Maupin said, adding that people line up their lawn chairs to see the motorcyclists out of the town of 360.
Sabre said that Brenton will battle lissencephaly his whole life, and it will come with mental and physical delays. How many developmental delays Brenton will experience is yet to be seen, as the condition is extremely rare.
“Each kid who has it is like a study,” Sabre said.
While lissencephaly is a genetic condition, Brenton’s tests led his doctor to believe the genetic mutation occurred within his own genes, and wasn’t passed down from either of his parents’ sides, Sabre said.
Maupin said that even those who don’t ride motorcycles are welcome to come to the dinner at his home Saturday evening. A silent auction for the event has brought Denver Broncos and Nebraska Huskers tickets, a French entryway door, handmade wooden flags, a handmade quilt and other items.
Sabre expressed her gratitude toward being chosen the recipient.
“We’re so in awe at all of it,” she said.
The funds raised, she said, would give Brenton the “possibility of a normal life.”
Right now, Sabre described Brenton as a happy, “talkative” baby.
“He loves being outside,” she said. “He loves going on walks and being able to look around.”